We believe it is vital that people with asthma, and parents and carers of people with asthma, are given the opportunity to influence and participate in research, and there is a building body of evidence of the positive impact that involving people can have.
Asthma UK works in partnership with a group of approximately 180 Research and Policy volunteers, all of whom have expressed an interest in getting involved in research. With this group and a strong network of wider supporters, we are uniquely positioned to facilitate patient involvement in research projects and funding applications (to Asthma UK and other funders).
We have experience of involving patients in a wide range of research activities, including prioritising research questions, preparing and commenting on lay summaries, reviewing research proposals, and being involved in advisory roles on active research projects. The Research and Policy volunteers are made up of people with asthma, parents of children with asthma and carers of people with asthma, over the age of 18. We would welcome the opportunity to discuss ways in which we can support your work and ensure the needs and priorities of patients are met.
Asthma UK has also previously facilitated recruitment of participants to research studies, where the opportunity aligns with our own strategy and has the potential to lead to impact for people with asthma. Please note that we do not currently recruit volunteers or participants who are under the age of 18.
Last year we were approached by a researcher looking for two people with asthma to input into the design of their study. The researcher later said:
"It was helpful meeting the two volunteers and I found their input useful - they were both very intelligent and articulate - when I apply for NIHR funding I will cite their involvement."
We also recruited a number of parents to take part in a focus group run by researchers based at the University of York. The researchers had the following feedback:
"I can give you overwhelmingly positive feedback about both the process and the experience of recruiting and working with the volunteers selected through your pilot project. We recruited exactly the people we needed, who were all motivated, attended the focus group and contributed with their time and experience which was invaluable for the project."
Send your completed application form to [email protected] and email us if you have any questions or would like to discuss your plans.