Asthma + Lung UK is working on research with partners at the University of Exeter, The Met Office and Public Health England to understand how using social media channels and tracking the kind of information you share on them, might benefit asthma care.
For example, the things you share about your life on Facebook, Twitter and Instagram – like how you’re feeling or places you’ve been – could potentially be used to produce the right asthma advice at the right time when there’s a seasonal trigger risk like high pollen.
Do you think that’s an inspired idea? Or does it make you feel uneasy? Either way, we need your opinions to shape this important research.
All entries are anonymous and completing the survey will only take around 4 minutes.
This survey is part of a project which is looking at whether we can and should use mentions of hay fever, asthma and pollen on social media to better predict and react to poor air quality. We are interested in whether people (over the age of 18) think it is acceptable for information they share on social media be used to help researchers and government departments better understand how many people have pollen related asthma and hay fever attacks, where those attacks happen, and whether this information should be used to help plan for health care needs.
For further information about the research please contact:
Sabina Leonelli, firstname.lastname@example.org or Becca Lovell, email@example.com, University of Exeter Medical School, K-Spa, Truro, TR1 3HD
If you have concerns/questions about the research you would like to discuss with someone else at the University, please contact: John Dupre, firstname.lastname@example.org
Your survey responses will be held in confidence. They will not be used other than for the purposes described above and third parties will not be allowed access to them (except as may be required by the law). Your data will be held in accordance with the Data Protection Act.
Data Protection Notice
The information you provide will be used for research purposes and the data will be processed in accordance with current data protection legislation and the University's notification lodged at the Information Commissioner's Office. Your responses will be treated in the strictest confidence and will not be disclosed to any unauthorised third parties. We will not collect any personal data. All data will be stored will be stored on Asthma + Lung UK’s and the University of Exeter’s secure servers.
The research is funded by the Economic and Social Science Research Council.
I have been fully informed about the aims and purposes of the project. I understand that:
- There is no compulsion for me to participate in this research project;
- Any information which I give will be used solely for the purposes of this research project, which may include publications or academic conference or seminar presentations;
- If applicable, the information, which I give, may be shared between any of the other researcher(s) participating in this project;
- All information I give will be treated as confidential.